Emily's GI Appointment

We had a follow-up appointment for Emily on Monday. She still isn't feeling any better and hasn't grown at all (she actually lost weight). Taking away soy has helped some, but not completely. Her NP Barbie said that they have another medicine we can try which is Singulair. Kind of crazy that she is taking all these medicines that are meant for other things but also are supposed to help with EE. If she isn't feeling any better in a month then we are supposed to take Milk, Wheat, Eggs, Peanuts, and Soy out of her diet. If she starts to feel better than after a couple of weeks we can start adding them back in one at a time to find what is causing this. Hopefully that will work because if not Emily gets to have another Endoscopy this year. Barbie said that sometimes when children have been in pain since birth their nerves endings will always tell them they are in pain (she had a technical word for it that I don't remember). So they would want to do another Endoscopy to see if she still has eosiniphils in her esophagus. If she does then the next step will be a formula diet (yuck). If not then they have some therapy she can do to treat the nerve endings so they won't tell her that she is in pain anymore. We are hoping that the singulair will work so we don't have to do all this other stuff.